Simply A Farmer’s Wife

Another CDH Angel.
May 29, 2009, 11:26 pm
Filed under: CDH

Wednesday morning Clarissa Ann Jones passed away in her mommy’s arms at Duke University Medical Center.   Her family had been staying at Parker’s House.  We are so saddened by her passing but know that God and all the angels welcomed her into Heaven. 

Her funeral is Monday at 3 pm in Elizabeth City, NC.  Ashley and I will make our way their Sunday night.  We have attended only one other funeral of an infant and that was Seth.  I don’t know how we’ll make it through the next few days but I do know that this mom and dad need us to be strong and we’ll do just that.  Please keep them in your prayers as they prepare to bury their child and learn to live a life without her. 

I am so angry that CDH has taken another life.  That CDH has robbed another family of their child.  Of all the memories, laughs and smiles.  It’s why we do what we do.  It’s not a hobby but a promise we made to our daughter three years ago and a promise we make to every family who is diagnosed with CDH. 

Please keep the family in your prayers.  If you’d like more information on the services please visit Twiford Funeral Home.


Awesome News.

I’ve been meaning to share this with y’all for quite some time now but just haven’t had the opportunity to really sit down and spend some quality time on it.  So today I decided that I would just do it before I forgot again or didn’t have the time.  Story of my life.

Anyway, Brad and Kellie Myers are staying at Parker’s House right now.  Actually they are at Duke right now in labor and hopefully Carter makes his grand entrance soon.  On their multiple trips to Duke they shared with the doctors up there about The Parker Reese Foundation and Parker’s House and the doctors started asking questions.  They wanted more information and were impressed with our mission to help CDH families.  So, long story short they asked for our info and we made some contacts and are in the process of scheduling a meeting with the CDH team at Duke for possible sponsorship.  I have spoken with 5 doctors, one was actually Parker’s doctor, and a social worker.  They are all very interested in working with our foundation on many different levels and supporting Parker’s House.  This news is overwhelming and I cannot even begin to explain what it will mean for families of CDH.  We are so excited to be working so  closely with one of the top facilities in North Carolina that we have to continue to pinch ourselves. 

We still cannot believe that after 10 months our foundation has grown to be what it is today.  We are so proud of all the people behind the scene that give countless hours of their own time and money.  We are so blessed to have the sponsors we do.  And we are especially blessed  that people are praying for our mission.  We believe first hand that prayer is powerful and it’s why we always ask you to say one for us and for all families past, present and future. 

We are in the process of opening our Chapter in Texas and are super excited about that.  We’ll have a Chapter in Texas y’all!  How freaking awesome is that?  Before long there will be a Chapter in every state.  We will change the face of CDH as we know it today.  We are making great efforts and strides to fund research, advocate awareness and support families affected by CDH. 

I am proud of what we’ve accomplished thus far and I know that with time our foundation will be even greater than it is today.  There are days when I question if I can do this or if I have the energy to do this and then I’ll get an email from a family and it confirms that I’m doing the right thing.  

We have some other really awesome things up our sleeves and I cannot wait to share those with y’all as they develop.  We are going to have a huge open house/anniversary party for Parker’s House next year so y’all start making plans to be there!! 


Nothing Exciting.

Well, I am anxiously awaiting this weekend.  We leave Friday night after work to head to Charleston, SC.  This weekend is the Family Circle Cup and we are both so excited about going.  We need a break from here so we are counting down the days!  Neither of us have been to a professional tennis match so it will be a new experience.  I started playing tennis when I was 8 years old.  I have loved the sport since then and quit playing about 4 years ago due to not having anyone competitive to play with.  I hope to change that soon as I would love to start playing again with anyone who’s willing.

In 10 days I leave for Canada.  I cannot wait to see Lauren, Amanda, Aimee and Lauren.  I am so excited about going and gosh I need my girls!  Lauren has gone through some rough patches lately and has been kicking butt in school and we need a few drinks and some girl time.  I have never been to Canada before so I’m excited about going somewhere new. 

We attended a birthday party on Saturday and that was hard.  Megan was born two weeks before Parker so seeing her is somewhat difficult for us.  I think what got me most was when we sang Happy Birthday to her.  My heart sank as I looked over at Ashley and saw the expression on his face.  I so wish that I could give our little girl back to him.  We had a good time and we adore Megan’s parents.  They have been so good to us since Parker passed.  We are blessed to have them in our lives. 

Sunday I went to a viewing at the funeral home where Parker was.   That was so hard.  I cannot even begin to describe what I went through going there.  It was like I was paralyzed.  I knew that I needed to be strong for her as she had just lost her father.  I think I made a huge step in my own grief by helping her through her own.  I had a small anxiety attack but made it through somewhat unscathed. 

I found someone to do Parker’s cupcakes for her birthday.  We had ordered a cake through a wonderful bakery in Raleigh but she is moving at the end of the month so we found someone else last night.  She emailed me today and she is absolutely wonderful!  I am excited about what she will come up with and know that it will be as delicate as Parker is.  I cannot wait to share them with y’all.  Cupcakes is the new rave this year and I found this awesome blog that y’all should definitely check out Cupcakes Take The Cake.   You will be so glad you did!

Well, it’s time to cook dinner as Ashley will be home soon.  Please keep us and all CDH families in your prayers.  So many of us are celebrating birthday and anniversaries that the next three months are hard.  Prayer is powerful people! 

It Still Stings Two Years Later.

Today 2 years ago we were diagnosed with a rare birth defect known as Congenital Diaphragmatic Hernia.  For those of you who know our story you know the impact this day had and continues to have on our lives. 

I remember sitting in the waiting room with Ashley.  My legs shaking badly because I knew something was wrong with our little girl.  It was a gut feeling.  We made our way into the room and for almost an hour and half they took measurment after measurement of Parker.   When we were told about her CDH I felt my world changing in the matter of seconds.  I knew we would walk out of that office and our lives would never be the same.  I cried for days wondering what would happen to our little girl.  A little girl we were told we would never have.  A miracle from our Lord. 

I don’t know how to confront this day each year except to honor our little girl and those babies who have been or will be diagnosed with Congenital Diaphragmatic Hernia. 

We have met many wonderful people through this journey.  Too many to mention.  We are thankful and grateful to each of them for what they have given us.  This journey would not be possible without God and our family and friends.  Thank you to each of you! 

Well, now that I cannot see through my tears I’m going to close.  Please just say a prayer for us as this day is a hard one and means that her birthday is a month away.  Wow, how time flies. 

Another One Lost
April 6, 2008, 7:04 pm
Filed under: CDH, Congenital Diaphragmatic Hernia, Grief, Loss, Prayer, Sadness

Our condolences to Faith Grace.  She lost her battle to CDH Saturday morning.  She was born March 6, 2006 in Michigan. 

Please visit her page at Carepages (FaithGraceCDH) and send her family your prayers and thoughts!

Happy Birthday Boys.
March 30, 2008, 11:35 am
Filed under: CDH, Friends, Grief, Loss, Love, Prayer, Uncategorized

Happy Birthday Bennett-Chadlen and Donny!

We miss you both so much!

Please keep Melissa, Theresa and Donny in your prayers as they celebrate without their little ones.


Prayer Requests.
March 27, 2008, 7:57 am
Filed under: CDH, Congenital Diaphragmatic Hernia, Friends, Prayer

Please pray for:

 Lauren as she is having surgery today. 

Saydie as she is having emergency bowel obstruction surgery and has a possible reherniation. 

Jaslyn as she is having seizures and transported to hospital via ambulance. 

I will udpate on each as I know more.