Filed under: Uncategorized | Tags: CDH, CDH Awareness, Congenital Diaphragmatic Hernia, Volunteer
CDH babies are dying too often and to be honest I’m so sick of it. I am so tired of hearing that another baby has died. That another family will know the pain that Ashley and I know. That another family will have a void because their child is gone. That another family will NEVER be the same.
This shouldn’t be happening in 2008! I am pissed off that parents are having to bury their children because of damn CDH! It’s a freaking hole so why can’t we fix it? I know it’s not that simple people but it seems like it should be.
In the last two weeks we’ve lost William Ethan, Elliott Arcile and Kaden Morrow. Those are just the ones we know about. There are countless others.
I am asking you today to step up and do something. Donate, volunteer, educate others! DO SOMETHING! If you don’t know what to do email me at jes_singletary@yahoo.comand I’ll give you some suggestions. If you live in the Texas area we are having a golf tournament in October in the San Antonio area. You can play or you can sponsor a hole. In order for us to find a cause and one day a cure we have to advocate for awareness and research. It starts with us. CDH families and friends. It’s time we make a difference. It’s time we save these babies.
Filed under: Uncategorized | Tags: Awareness, CDH, Congenital Diaphragmatic Hernia, Support Group
The Parker Reese Foundation
Filed under: CDH, Congenital Diaphragmatic Hernia, Friends, Loss, Love, Prayer | Tags: CDH, Charleston, Congenital Diaphragmatic Hernia, Family Circle Cup, Love, Parker, Prayer, Tennis
Well, I am anxiously awaiting this weekend. We leave Friday night after work to head to Charleston, SC. This weekend is the Family Circle Cup and we are both so excited about going. We need a break from here so we are counting down the days! Neither of us have been to a professional tennis match so it will be a new experience. I started playing tennis when I was 8 years old. I have loved the sport since then and quit playing about 4 years ago due to not having anyone competitive to play with. I hope to change that soon as I would love to start playing again with anyone who’s willing.
In 10 days I leave for Canada. I cannot wait to see Lauren, Amanda, Aimee and Lauren. I am so excited about going and gosh I need my girls! Lauren has gone through some rough patches lately and has been kicking butt in school and we need a few drinks and some girl time. I have never been to Canada before so I’m excited about going somewhere new.
We attended a birthday party on Saturday and that was hard. Megan was born two weeks before Parker so seeing her is somewhat difficult for us. I think what got me most was when we sang Happy Birthday to her. My heart sank as I looked over at Ashley and saw the expression on his face. I so wish that I could give our little girl back to him. We had a good time and we adore Megan’s parents. They have been so good to us since Parker passed. We are blessed to have them in our lives.
Sunday I went to a viewing at the funeral home where Parker was. That was so hard. I cannot even begin to describe what I went through going there. It was like I was paralyzed. I knew that I needed to be strong for her as she had just lost her father. I think I made a huge step in my own grief by helping her through her own. I had a small anxiety attack but made it through somewhat unscathed.
I found someone to do Parker’s cupcakes for her birthday. We had ordered a cake through a wonderful bakery in Raleigh but she is moving at the end of the month so we found someone else last night. She emailed me today and she is absolutely wonderful! I am excited about what she will come up with and know that it will be as delicate as Parker is. I cannot wait to share them with y’all. Cupcakes is the new rave this year and I found this awesome blog that y’all should definitely check out Cupcakes Take The Cake. You will be so glad you did!
Well, it’s time to cook dinner as Ashley will be home soon. Please keep us and all CDH families in your prayers. So many of us are celebrating birthday and anniversaries that the next three months are hard. Prayer is powerful people!
Filed under: CDH, CDH Awareness, Congenital Diaphragmatic Hernia, Grief, Loss, Love, Parker, Prayer, Uncategorized | Tags: Congenital Diaphragmatic Hernia, Loss, Love, Prayer
Today 2 years ago we were diagnosed with a rare birth defect known as Congenital Diaphragmatic Hernia. For those of you who know our story you know the impact this day had and continues to have on our lives.
I remember sitting in the waiting room with Ashley. My legs shaking badly because I knew something was wrong with our little girl. It was a gut feeling. We made our way into the room and for almost an hour and half they took measurment after measurement of Parker. When we were told about her CDH I felt my world changing in the matter of seconds. I knew we would walk out of that office and our lives would never be the same. I cried for days wondering what would happen to our little girl. A little girl we were told we would never have. A miracle from our Lord.
I don’t know how to confront this day each year except to honor our little girl and those babies who have been or will be diagnosed with Congenital Diaphragmatic Hernia.
We have met many wonderful people through this journey. Too many to mention. We are thankful and grateful to each of them for what they have given us. This journey would not be possible without God and our family and friends. Thank you to each of you!
Well, now that I cannot see through my tears I’m going to close. Please just say a prayer for us as this day is a hard one and means that her birthday is a month away. Wow, how time flies.
Simply A Farmer's Wife 